ALS Better Care Act

Sponsor: Janice D. Schakowsky (Democratic-IL)

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Introduced

In Committee

Passed One Chamber

Passed Both Chambers

Signed into Law

Referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.

Medicare would cover more specialized ALS care with no out-of-pocket costs for patients.

This bill would make it easier for people with ALS to get the specialized care they need by adding new services to Medicare coverage. It would also create a new payment system for clinics that treat ALS, helping them offer better care without patients paying extra. These changes would start on January 1, 2027.

What Would Change

Currently, Medicare does not have a specific, supplemental payment system for a comprehensive set of ALS-related services, leading to inadequate reimbursement for clinics. If this bill passes, Medicare would cover a defined set of ALS-related services starting January 1, 2027, with a new supplemental payment system for qualified providers, beginning at $800 per visit, and no cost sharing for patients.

Key Provisions

Adds specialized ALS care, like therapy and doctor support, to Medicare coverage starting January 1, 2027.
Creates a new Medicare payment system for clinics that treat ALS, starting with $800 per visit in 2027, in addition to other payments.
Requires people with ALS to pay nothing out-of-pocket for these new services.
Requires the government to study and recommend fair payment amounts for ALS care every three years, starting January 1, 2027.
Requires a report on challenges in ALS clinical trials to help find new treatments, due 90 days after the bill becomes law.

View on Congress.gov

HR 7336 · 119th Congress · AI Summary by gemini-2.5-flash · 8/10

ALS Better Care Act

What Would Change

Key Provisions

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