DeOndra Dixon INCLUDE Project Act of 2025

Sponsor: Diana DeGette (Democratic-CO)May 19, 2025

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Introduced

In Committee

Passed One Chamber

Passed Both Chambers

Signed into Law

Referred to the House Committee on Energy and Commerce.

Creates a new national research program to improve understanding and care for people with Down syndrome.

This bill would create a new national research program at the National Institutes of Health (NIH) to improve understanding and care for people with Down syndrome. Called the 'INCLUDE Project,' it would expand research and clinical trials on Down syndrome and related health conditions, aiming to benefit individuals with Down syndrome and their families.

What Would Change

Currently, there is no specific, named national program within the Public Health Service Act dedicated to comprehensive research on Down syndrome. If this bill becomes law, the National Institutes of Health (NIH) would be authorized to create the 'INCLUDE Project,' a new program focused on expanding research, training, and clinical trials for Down syndrome and its related health conditions across a person's entire life.

Key Provisions

Creates a new national research program at the NIH called the 'INCLUDE Project' to study Down syndrome.
Expands research into how Down syndrome affects human development, health, and quality of life across a person's entire life.
Expands clinical trials to include or specifically target people with Down syndrome, testing new treatments and therapies.
Supports research to better diagnose and treat health conditions that often occur with Down syndrome, like Alzheimer's disease and autoimmune disorders.
Requires NIH to coordinate all Down syndrome research efforts and avoid repeating studies already underway.
Lets patient advocates and other groups share their needs and ideas with NIH for this research program.

View on Congress.gov

HR 3491 · 119th Congress · May 19, 2025 · AI Summary by gemini-2.5-flash · 10/10

Lobbying Activity

4 filings mentioned this bill

Top Lobbying Clients

GLOBAL DOWN SYNDROME FOUNDATION

2 filings

ALZHEIMER'S ASSOCIATION

2 filings

Top Lobbying Firms

1.BLUEBIRD STRATEGIES2 filings

2.ALZHEIMER'S ASSOCIATION2 filings

Amounts reflect total quarterly lobbying spend reported to the Senate, not bill-specific spending. Source: Senate LDA filings.